Parents and those born early or sick using their NICU Lived experience to impact Research, Advocacy & Clinical Practice.
About us
The NICU Lived Network is for those with lived NICU experience (parents as well as those born early or sick) who want to learn more and use that experience to assist in research, advocacy, and clinical practice improvement.
Created by long-time parent representatives Natalie Merida, Melinda Cruz Turner and Emma Davis, the network features 15-20 minute episodes with health professionals and parents. Our purpose is to open the door between the work happening within NICUs and those who want to share their experiences for positive change.
Every episode will share a variety of topics including:
- current trials
- the networks behind the NICUs
- newly published papers
- the importance of consumer representatives
- speak with other NICU parents
- hear from adults who were born premature
- and ways you can use your NICU lived experience to have a voice and impact change.
Thank you for joining us, Nat, Mel and Em.
Stay up to date on our socials
Our episodes
Peek-a-boo NICU with Jill Iza Daub
A Father's Perspective with Chris Wood
Endometrial Origins of Stillbirth (EOS) Study with Associate Professor Miranda Davies-Tuck
Neonatal Cell Therapy Trials with Associate Professor Atul Malhotra
The wait a minute or More (wamM) Trial with Dr Himanshu Popat
The PLUSS Trial results with Professor Brett Manley
Twin Anemia Polycythemia Sequence (TAPS) with NICU mum Marni Cochrane
The GIFT Trial with Professor Alice Rumbold
NICU Lived Network Launches
What is a Consumer Representative?
PSANZ 2023 with Dr Miranda Davies- Tuck
PSANZ 2023 Recap
Speaking with NICU Researchers
Torpido 30/60 Trial with Professor Julee Oei
Clinical Trials in the NICU with Professor William Tarnow-Mordi
HIE Awareness Month with Betsy Pilon for Hope for HIE
SMS4Dads with Dr Rebecca Liackman
Filmed outside Royal Darwin Hospital
Aspects of a Consumer Representative
A Revisit : What is Consumer Led Research? The Webinar presented by the White Coats Foundation
The WHEAT Trial with Associate Professor Tim Schindler
Your Voice Your Story : a White Coats Foundation Initiative
Parent advocacy and making difference with Jodi Klaristenfeld from FLRRiSH
Be Sweet to Babies with Professor Denise Harrison
2023 PSANZ - IMPACT’s Two-day Concept Development Workshop
The PSANZ CAP - Consumer Advisory Panel
The WHEAT Trial with Associate Professor Tim Schindler
The Adult Preemie Advocacy Network with Lauren Ingledow and Juliette Lee
Sound in the NICU with Maria Chifa
"LESS IS MORE : My Top 5 Recent Papers in Neonatology" with Associate Professor Brett Manley
My Preemiehood with Christina Gagnon - born at 25 weeks in 1986
The PERIScope Project with Dr Rachel Collum & Lauren Ingledow
3 Opportunities for you
Episode Highlight : The SurPre trial
Episode Highlight: Most Premature Babies PSP Survey
Episode Highlight: The PLATIPUS Trial
My Birth Story with Andria Lapare (born at 27 weeks in 1985)
PLATIPUS with Dr Clare Whitehead & Prof Brett Manley
A miracle in the NICU with Jacque Herman : born at 2 pounds, 2 ounces (984g)
2023 ANZNN Clinical Practice Improvement Conference
Nurturing ChAMPs with Dr Grace Fitzallen
Our 2023 Wrap Up!
Meet the team
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Natalie Merida
- Mum to 29 weeker twin boys
- Parent Representative, ANZNN Executive Committee
- Chair, PSANZ Lived Experience Advisory Network (LEAN)
- Parent Representative, PREMITUR study
- Former Parent Representative, Miracle Babies Foundation
Emma Davis
- Mum to 27 weeker boy
- Parent Representative, ANZNN Executive Committee
- Advisory Committee, SurPre Trial
- Former Parent Representative, Miracle Babies Foundation
Melinda Cruz Turner
- Mum to 34, 27, 37 weeker boys
- Associate and Chief Investigator on multiple Neonatal trials including WHEAT and SurPre
- Lived Experience Committee Chair, PLATIPUS
- TrialWinner, ACTA Consumer Involvement Award
- LifeBlood Milk Bank, Advisory Board
- Co-author on 17 publications in peer reviewed journals
- Senior Research Officer, University of Sydney
- Member, PSANZ Lived Experience Advisory Network
- Part of the Alpha Collaboration
- Founder, Miracle Babies Foundation (exited)
Contact us
Enquiry, topic idea or want to be a guest?
BOOK HERE: www.calendly.com/niculivednetwork
